Wayne continues to look for work. He would like to be a security guard
or hospital orderly. He sends his resume everywhere. But he hardly ever
gets an interview.
Wayne also lives on social assistance. Recently, his only work has
been short term projects at the Longside Club. "I'm going to keep
on looking for a steady job," he says. "But there are lots
of people without disabilities also looking for jobs. I still keep hoping,
though, that something will turn up."
Rene Rubia
Rene Rubia was born in St. John's in 1969. At first, he appeared to
be a normal little boy. But at the age of five he developed a strange
habit. "I would take a deep breath," says Rene, "hold
it in, and tense my body up. Several times I fainted." Rene
did other odd things with his breathing. "I would take a real sharp
intake of breath and make long breathy noises." Rene would do this
over and over. He was showing the first signs of a condition called
Tourette's Syndrome.
About one in every 2500 people develop this strange disease. Doctors
think that Tourette's Syndrome is caused by too much of a brain chemical
called dopamine. People with Tourette's have nervous "tics" —movements
or sounds that the person cannot control. Some examples of tics are
constant sniffling, jerking of different parts of the body, kicking
or stamping. People with Tourette's may also make strange noises: hoots,
barks and hisses. One of the strangest things about the condition is
that many people with Tourette's will often shout out obscene words
or phrases. Some people with Tourette's also have "obsessive
compulsive" behaviour. They will repeat certain actions like
polishing a ring, washing their hands or brushing their teeth. Sometimes
they will repeat everything that is said to them. Rene's compulsive
behaviour showed in his mood swings. "I had really fast mood swings,"
he says. "One minute I'd be crying because I had no friends. The
next minute I'd be happy as a lark."
Childhood was difficult for Rene. "I had some friends,"
he says. "The ones that were a little more open minded. But I spent
a lot of time alone." It really upset Rene when people told him
that he could control his tics if he just tried harder. "It was
like they were trying to reason my Tourette's out of me," he says.
"But that's impossible. This is a medical condition." When
Rene was about 14, he began to have swearing tics. "I would shout
out swear words at the top of my lungs," he says. "Half the
time I'd be tired out by the end of the day." For Rene, school
became a real problem. "Teachers would threaten to send me to the
principal," he says. "But I couldn't help it. The words would
just come out." He also faced a lot of teasing. "I had a bad
temper," says Rene. "I used to get into a lot of fights."
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